At the maternity hospital, after Sonya's emergency birth, her parents were informed that the girl had Down syndrome.
Was it scary? “Nothing so special,,” he says, “a person, when necessary, can do nothing like that. I called the Rescue Service, they explained to me in a nutshell what to do, and that was it. Sonya was born quite easily, I put her on my mother's stomach, and soon an ambulance arrived. According to him, he did not experience any stress, he was concerned that everything went well. And now he remembers the birth of Sonechka as one of the happiest episodes of their family life.
Sonya is the second and long-awaited child of Alexander and Galina. She appeared in the family 16 years after Ksyusha's first daughter.
"We always wanted children, but we didn't give birth stupidly, because of some disorder," says Alexander.
Pregnancy was a time filled with joy for both. When the doctors suggested a special study for genetic disorders, Alexander and Galina asked if this could change anything. When they found out they didn't, they refused. After all, they knew that under no circumstances would they refuse the birth of a child.
Already later, Alexander said: “It’s good that we didn’t find out anything then, otherwise the remaining 3-4 months would not have enjoyed the pregnancy, but would frantically search for information.”
In the maternity hospital where the whole family ended up after Sonya's emergency birth, her parents were told that the girl had Down syndrome. “We didn’t know anything about this syndrome then,” Alexander admits. Gradually, the relatives were informed about the diagnosis - the eldest daughter, grandparents. At first, of course, no one believed - "such smart eyes", then they cried, and then calmed down. Galya and Alexander themselves did not have depression, which is characteristic of many “down” parents, they simply began to look for information and people who would explain, help, and advise.
Alexander says that since birth, Sonya has radically changed their lives,and for the better. Before that, they lived in a small town 60 km from Moscow. Worked: Alexander - the director of a small construction company, Galya - in the town as an engineer at a research institute. When Sonya appeared, it became clear that she would have to deal with a lot. Literally from the very first days of his daughter's life, Alexander went to the Downside Up organization, which supports children with Down syndrome, found out what examinations and classes Sonechka needed.
And the changes began: first they changed the car so that Sonya would be comfortable driving for a long time. Then they moved closer to Moscow, changed their usual mode of life. “What we have achieved now,” Alexander admits, “would not have happened without Sonya. We led a measured calm life, everything suited us. Sonya made us move." Soon we bought a second car - for Galya, now she carries Sonechka.
Almost every day Sonechka studies - with a speech therapist, in a music studio, etc.Moreover, she studies on a par with ordinary children and, if she lags behind them, then quite a bit. Alexander and Galina believe that everything is fine with them, and they are satisfied with their lives. The eldest daughter Ksenia, on her own and without additional help, entered the Moscow State University, to the budget department. “We satisfied all our pedagogical ambitions with our older child,” Alexander laughs, “so we just enjoy with Sonechka, we slowly learn and don’t really worry about physics, mathematics and other sciences. As it will be, so it will be.”
Sonya herself is a smiling girl with red ponytails, rejoices at everyone she meets, looks at pictures and looks exactly as happy as her parents.
By the way…
- 50% of fathers leave a family where a disabled child is born.
- 4% of them help raise a disabled child.
- 32% of fathers never meet their disabled children. These are the official data. But non-state sources claim that in fact:
- 90% of disabled children are raised by single mothers.
- If parents can use a psychological support service, like Downside Up, for example, then most dads stay in families.